đź’” Meet Oli-Jay Morris, a brave little fighter from Haverhill, Suffolk, who’s facing a battle unlike any other. Just hours after his birth, Oli-Jay’s tiny arm began shaking involuntarily. Fast forward two years, and his family is grappling with the heart-wrenching reality that their precious boy is the only person in the world diagnosed with a rare, deadly condition linked to a unique gene mutation known as EMPF1.
The journey hasn’t been easy. After a “catastrophic” seizure shortly after his second birthday, Oli-Jay wound up in intensive care, and his parents, Melanie and Rob, were given news no parent wants to hear. Despite multiple attempts, doctors have yet to find a cure for this mysterious condition, leaving the family hoping for a miracle.
đź’Ş Oli-Jay requires around-the-clock care, and his family is doing everything they can to ensure his happiness and comfort. Their living room has transformed into a mini ICU, as they monitor him 24/7, while managing his medications and tube-feeding.
In a bid to find new treatment options, Oli-Jay’s aunt, Paige, has launched a fundraiser to raise ÂŁ14,000 for a personalised analysis by a US-based company specialising in genetic study. So far, over ÂŁ11,000 has been raised, and the family remains determined to exceed their target to seek a remedy for Oli-Jay’s condition—and hopefully, for all children affected by DNM1L mutations.
🙏 Melanie, who heartbreakingly lost her first son, shared, “We’re spending every day making memories because we don’t know how long he has left. Our world is tipped upside down, but our hope for a miracle never ends.”
Let’s rally around Oli-Jay and his family! Your support, shares, and donations could make all the difference in their search for hope and healing.
👶❤️ #HelpOliJay #GeneticDiseaseAwareness #MiracleForOliJay