Rugby legend Kevin Sinfield made a heartfelt promise to a Welsh family mourning the loss of their teenage son, Kyle Sieniawski, who died from motor neurone disease (MND) only a week ago. During his visit to Swansea, Kevin met with Kyle’s parents, Mark and Melanie, and his brother Liam, dedicating his ultra-marathon run to Kyle’s memory. Kyle, affectionately called a “little superhero,” was just 14 and had been a joyful boy, passionate about taekwondo until his diagnosis in January.
Kevin, determined to honour Kyle, pledged to run “faster and harder,” ensuring that the MND community stands with them. He promised to do his utmost to prevent other families from facing the same heartbreak, saying, “We’ve got to make sure that Kyle is always remembered.”
In a touching moment captured on BBC Breakfast, Mark spoke of the urgent need for MND awareness and funding. Melanie echoed this, emphasising the brutal nature of the disease, which can strike unexpectedly at any age.
Kyle spent much of his last year at Noah’s Ark Children’s Hospital in Cardiff, battling the disease alongside his family. Despite their best efforts to adapt their home for his care, they found themselves caught in a gap in the system, unable to bring him home. Sadly, Kyle passed away on November 27, after a brave fight that his family shared openly to raise awareness about MND.
In a poignant message on Facebook, Kyle’s family expressed their unimaginable sorrow, saying, “Kyle… we’ll miss you so very much buddy and we love you more than words could ever possibly say.”
Kyle’s journey reminds us of the importance of community and support in the fight against MND. Let’s come together to raise awareness and help find a cure for this devastating disease, honouring Kyle and all the families affected.