A brave Cardiff mum, Kelsey Lowery, is opening up about the constant worries and challenges tied to raising her daughter Hope, who battles epilepsy. Hope, now 12, began having seizures at just six months old. Initially thought to be due to high fevers, these episodes have been a constant in their lives, despite doctors’ early reassurances. It wasn’t until 2021, during the COVID pandemic, that an EEG revealed Hope’s epilepsy diagnosis.
Kelsey paints a vivid picture of the unpredictability they face daily. Imagine being unable to even run a quick errand without fear that the phone might ring with distressing news about your child. Hope’s seizures are like “fireworks exploding” inside her brain, a terrifying reality for any parent. And when these happen in public, misinformation often leads to hurtful assumptions from onlookers.
Despite these obstacles, the family’s journey is also filled with resilience and determination. Hope’s transfer to a specialist school in 2025 has been transformative, reigniting her spark. She’s dancing again, making friends, and finding joy. According to Kelsey, it’s been life-changing.
However, the fight isn’t over. Kelsey stresses the need for awareness and education about epilepsy and other hidden disabilities. Her son Kayden, 9, has become an expert on helping his sister, and Kelsey believes all children should receive similar education to foster understanding and compassion.
Recognition from Epilepsy Action, which awarded Hope a Star Award, has been a significant confidence booster. Kelsey is resolute that epilepsy won’t define Hope’s life. She shares a candid, powerful message: “Life will be hard at times, and there will be obstacles, but epilepsy will not define Hope. We won’t let it.” Their story is a testament to resilience and the power of family support. 💜 #EpilepsyAwareness #BraveHope #FamilyStrength