🌟 Brave Daisy’s Journey 🌟
Meet Daisy Fisher, a spirited 14-year-old from Barnsley, South Yorkshire, who’s been battling an unexpected foe. For months, Daisy was told her pains were just part of growing up. But when unexplained symptoms like fainting and numbness set in, her mum knew something was amiss.
After countless appointments and tests, the truth emerged: Daisy has a rare neurological disorder called Charcot–Marie–Tooth Type 4J (CMT4J). This aggressive condition leads to muscle weakness and reduced mobility, threatening to take away her ability to walk. Shockingly, there’s currently no treatment available in the UK for this rare disease.
But hope is not lost. Daisy’s mum, Adele, is on a mission to get her daughter the help she needs. She’s looking to the US, where a promising gene therapy trial could slow or halt the disease’s progression. Adele is tirelessly fundraising to make this life-changing opportunity a reality for Daisy.
Daisy’s remarkable resilience shines through despite the exhaustion and chronic pain. Her mum says, “The fatigue is the most debilitating thing, yet she keeps her spirits high. She’s not a complainer—a true warrior.”
The family has launched a fundraising appeal to cover essential costs like specialist travel insurance and support as Adele remains Daisy’s full-time carer. Every bit of help counts in their fight to reclaim Daisy’s future.
Join us in spreading Daisy’s story and supporting this incredible girl’s journey. 🌼💪
#HopeForDaisy #CMTAwareness #RareDiseases