Back in Christmas 2017, the Meacham family’s world was turned upside down. Their vibrant, healthy son, Thomas, suddenly became ill and was diagnosed with a rare and devastating brain disorder called adrenoleukodystrophy. This cruel condition relentlessly stripped away his abilities, leaving his family heartbroken. In just 18 months, Thomas went from a playful eight-year-old, passionate about reading, Star Wars, and karate, to losing the ability to walk, talk, and see. Despite the rapid progression of his illness, Thomas and his family found joy and support at Ty Hafan children’s hospice. This incredible place became their sanctuary, offering not just care for Thomas but ongoing support for the whole family, even years after his passing in June 2019.
This weekend, his father, James, will lace up to run the Cardiff Half Marathon in honour of Ty Hafan. It’s their way of giving back to the hospice that offered them hope in the darkest of times. James shared how Ty Hafan continues to support their family: “They were there from the start and are still with us now. My daughter, who was five when Thomas passed, is now 11, and they continue to provide her with therapy and counselling.”
James describes Ty Hafan as a place filled with colour, joy, and noise—defying the typical image of a hospice. He feels proud to represent a place that brings hope, turning the pain into advocacy and action. By running marathons, James aims to show gratitude and raise awareness for Ty Hafan, proving that even in the face of unimaginable loss, positivity can prevail.