Meet Clive Phillips, a former soldier whose journey took a surprising turn when he couldn’t deliver a simple thumbs-up. At just 50, he discovered he had multifocal motor neuropathy (MMN), a rare and incurable neurological condition, making even daily tasks a challenge.
Originally hailing from Birmingham, Clive’s life was full of adventure, from military service across various countries to scaling mountains and cycling through breathtaking landscapes. But in his late 30s, odd symptoms like difficulty holding pint glasses and buttoning shirts began to surface. Ignoring them initially, it wasn’t until he struggled with a thumbs-up that he sought answers, leading to his MMN diagnosis in December 2019.
MMN often masquerades as motor neurone disease, causing confusion and delays in diagnosis. Clive, now based in New Zealand, channels his experiences into a positive mission. He founded “Making the Most of Now,” a social initiative raising awareness and giving voice to those affected by MMN.
Thanks to regular treatment, Clive’s condition has stabilised, although he still experiences symptoms such as muscle wastage and reduced hand strength. His determination remains unwavering. Clive undertakes impressive cycling challenges, including a recent 22-day Tour de France-inspired ride, all to support MMN research.
Clive believes in the power of community and self-advocacy, urging others to stay connected and informed. With hope and awareness, Clive and his community strive for a future with quicker diagnoses and better treatments for MMN.
Feeling inspired? Learn more about Clive’s mission and join him in spreading awareness for MMN by visiting makingthemostofnow.co.nz. Remember, every thumbs-up counts! 🧡🚴♂️ #MakingTheMostOfNow #MMNAwareness #ThumbsUpForChange