🌟 Incredible news for 12-year-old Gabrielius from East London! 🌟 Living with the rare skin condition RDEB, which makes even the slightest friction painful, Gabrielius finally has some hope. Thanks to a groundbreaking trial at Great Ormond Street Hospital, he’s received a new stem cell treatment that’s shown promising results!
His mum Jolita is thrilled, noting that his wounds heal quicker, his skin is less inflamed, and he gets better sleep. Imagine going from constant bandage changes to being able to enjoy playing football with friends!
Gabrielius joined a trial that uses stem cells to potentially ease symptoms of RDEB. Around 150 children in the UK suffer from this painful condition. RDEB makes the skin extremely fragile, leading to blisters, wounds, and in severe cases, skin cancer in young adulthood.
The trial, backed by NHS England and other organisations, tested a treatment called CORDStrom. Children were given this treatment every four months and monitored for changes in their condition. Gabrielius is one of 30 kids participating, and the results have been heartening, especially for those under 10.
The trial results have been published in a medical journal, showcasing a positive impact on daily life and wellbeing. The treatment could be a game-changer, reducing pain and itchiness for those battling RDEB.
Researchers are pushing for regulatory approval in the UK, hoping CORDStrom can become a routine treatment. The journey isn’t over, but it’s a giant step forward in giving kids like Gabrielius a brighter, more comfortable future.
We’re cheering for Gabrielius and all families affected by RDEB—thank you to the dedicated researchers and doctors for their relentless work! ❤️🤞 #HopeForGabrielius #MedicalBreakthrough #RDEB #GreatOrmondStreetHospital