Jesy Nelson recently revealed some heart-wrenching news about her twins that had fans moved. In a tearful interview on This Morning, the former Little Mix singer shared that her eight-month-old twins have been diagnosed with Spinal Muscular Atrophy (SMA), a rare, progressive muscle-wasting condition. Jesy’s mission? To raise awareness and call for better early diagnosis options.
Jesy shared how she first noticed something was off when the babies moved their legs less than expected, a warning sign she learned only later was significant. Her candid video, in which she admits, “I knew something wasn’t right,” has touched many hearts. She talks about how this condition could have been detected at birth with a simple heel prick test—a test not routinely offered by the NHS.
Despite the doctor’s prognosis that the twins might never walk, Jesy’s determination shines through. “I’m going to shout from the rooftops,” she says, aiming to ensure other parents don’t miss early signs. Jesy candidly spoke about her emotional journey and the struggles of adapting to a new life dominated by medical routines.
Right now, Jesy is channeling her energy into raising awareness. “Every parent needs to hear this,” she emphasised. It’s a brave step towards changing how SMA is handled from birth, potentially saving lives and transforming futures. The twins have undergone an infusion treatment, and while the journey ahead remains challenging, Jesy remains optimistic.
“When I watch back videos from when they left NICU, there’s a clear change in their movements. Knowing that it could have been different if caught earlier is hard to swallow,” Jesy expressed, highlighting the importance of early diagnosis.
Jesy’s openness is a poignant reminder of the battles many families face in silence. She stands as an advocate for change, hoping her story will resonate and lead to greater awareness and support for SMA and newborn screening. Supporting her twins every step of the way, Jesy is a testament to how love and hope can shine even through the toughest challenges. 💖