đź’” A heart-wrenching story from Christchurch, Dorset: Mum Stacey Sprason’s world was turned upside down when her young daughter Teraysa was diagnosed with the rare and incurable Batten disease. This devastating condition affects just 40 children across the UK and means Teraysa may not see her 10th birthday.
After a terrifying seizure led to this diagnosis, Stacey is grappling with the gut-wrenching reality of watching her daughter’s health slowly decline. “It’s like losing her bit by bit,” Stacey painfully shares. The disease could rob Teraysa of her sight and ability to walk, talk, eat, and swallow.
Faced with the unimaginable, the family is focusing on creating as many memories as they can. One dream stands out—to take Teraysa to Disneyland, a magical experience they hope to achieve. With treatment costs soaring to a staggering ÂŁ500,000 per year, which thankfully is being funded, the family’s goal is now to raise ÂŁ11,000 to ensure these cherished moments and aid with travel expenses for her ongoing treatment in London.
Every bit of support counts, and they’ve already raised over ÂŁ4,663. They’re holding onto hope, hoping for a miracle cure, and cherishing every moment with their little warrior. “Hope is all we have,” Stacey emphasizes. Let’s rally behind them and help make precious memories for Teraysa. 💖✨ #HopeForTeraysa #BattenDiseaseAwareness #DreamsForTeraysa
🙏 If you’re moved by their story, consider lending your support or spreading the word. Together, we can make a difference.