💔 Ellie James’ heartbreaking story is one of love, loss, and a fight for change. Her wonderful husband, Owain, passed away from a brain tumour at just 34. Despite being told he was receiving top-notch care, it mirrored the treatment from decades past, leaving Ellie feeling profoundly let down by the NHS.
In Owain’s memory, Ellie is championing “Owain’s Law” to revolutionise how brain tumour tissue is stored and used. Currently, a staggering 79% of patients don’t have their tissue stored in a way that could benefit future treatments or research. Owain’s story highlights the critical need for fresh-frozen tissue storage, influencing how we approach trials, genomic sequencing, and more.
Owain’s miraculous response to a personalised vaccine using his own tumour tissue regretfully wasn’t enough due to tissue storage errors. This pivotal moment made Ellie question how decisions are made without proper patient involvement. She’s determined to ensure no other family faces such heartbreak.
Ellie’s campaign has gained momentum, with over 14,000 signatures supporting her petition. Owain’s Law isn’t pushing experimental treatments but striving to give patients the choice and power over their medical journey.
Ellie’s plea is simple yet profound: let’s ensure informed consent and empower patients with choices that could extend lives and fuel advancements. The cost to implement these changes nationwide is minimal compared to the lasting impact it could have on patients and research.
Join Ellie in her campaign for change. Sign the petition for Owain’s Law, and push for the necessary transformations in how we handle brain tumour tissues. Every signature brings us closer to making sure patients and their families like Ellie’s don’t face these shortcomings again. ❤️ #OwainsLaw #BrainTumourAwareness #InformedConsent #PatientEmpowerment