Father with rare medical condition compares pain to having a wrench twisted in his head

Meet Gerwyn Tumelty, a dad from Swansea who’s faced the unimaginable pain of Trigeminal Neuralgia (TN). Often called the world’s most painful condition, TN feels like an ice pick or screwdriver being driven into your face. Gerwyn’s journey began in 2017 with a sudden, electric shock-like pain in his jaw that gradually worsened over time.
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Imagine feeling jolts of excruciating pain throughout your day, sometimes lasting hours, and even waking you up at night. Gerwyn knew this agony far too well. After numerous visits to healthcare professionals, he was finally diagnosed and went under the knife for relief.
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A breakthrough came with a procedure called microvascular decompression. This surgery relieved the pressure on Gerwyn’s trigeminal nerve, putting an end to his relentless pain. He described the relief post-surgery as immediate and life-changing.

Despite the challenges, Gerwyn has not only conquered the pain but also achieved incredible feats. In 2023, he ran the London Marathon, raising thousands for the Trigeminal Neuralgia Association. His story is a testament to resilience and the triumph of the human spirit over seemingly insurmountable obstacles. 🌟

TN affects about eight in every 100,000 people in the UK. Although the cause is still debated, it’s thought to occur when the trigeminal nerve sends inappropriate pain signals. Treatments like Gerwyn’s don’t always work for everyone, but they hold hope for many sufferers.

For those battling TN, there is support available. The Trigeminal Neuralgia Association offers resources, and the NHS provides guidance on managing this condition. Gerwyn’s journey is just one example of how determination and the right treatment can change lives. 💪

Stay strong, and remember, you’re not alone. Share this story to spread awareness about Trigeminal Neuralgia and support those who need it. 💙