Heartbroken yet determined, Mia Clark shares a story every parent should know. Her adorable daughter Harper was just a happy, healthy baby until a noticeable tremor in her little hand raised suspicions that couldn’t be ignored. Despite visiting doctors 56 times over a year, their concerns were brushed off – even being told Harper was simply “lazy.”
At eight months, her struggles to crawl and frequent hunching were undeniable. Fast forward a year, and Mia fought through frustration and disbelief to finally receive the devastating diagnosis: Spinal Muscular Atrophy (SMA) type two.
SMA, a rare genetic disorder, results in muscle weakness and can be life-threatening if undiagnosed. Jesy Nelson, formerly of Little Mix, has also publicly shared her twin’s battle with the condition, helping to spotlight the issue.
With seven doses of Spinraza, the first treatment for SMA, and dedicated physiotherapy, Harper is defying expectations. Once unable to stand, she’s now proudly taking steps with a walker, dreaming of the day she’ll walk on her own. Mia’s on a mission! She’s launched a GoFundMe page to support Harper’s medical journey and raise awareness about SMA and its impact.
Mia emphasizes the importance of trusting your instincts and advocating for quick diagnosis, as early intervention can mean the world for affected kids. Let’s rally behind Harper and others fighting against SMA and bring it more into the public eye.
Want to support this cause? Check out Mia’s GoFundMe to help Harper’s journey. 💜 #SMAAwareness #HarperStrong