🎉 Breakthrough in Wales! 🎉
Nigel, a determined 61-year-old from Kidwelly, has been battling haemophilia since he was just 11 months old. Today, he’s sharing his incredible story of hope and progress. Thanks to a revolutionary gene therapy at the University Hospital of Wales, Nigel has become the first person in Wales to receive a treatment that means no more weekly injections!
Nigel shared, “Receiving gene therapy is extraordinary! Being the first is both an honour and a responsibility. It’s not a traditional cure, but a major relief not to have to inject myself weekly. Now, my body can produce the missing factor IX on its own.” He expressed immense pride in this milestone, both personally and for the future of those living with severe haemophilia B.
This cutting-edge treatment is a game-changer. The Cardiff Haemophilia Centre now acts as a national hub for this life-changing therapy. Patients from across Wales are welcomed to receive Hemgenix (etranacogene dezaparvovec) — a one-time infusion that empowers their own bodies to produce the vital clotting protein.
Dr. Samya Gwen Obaji, a leading Consultant Haematologist, stated, “This is a significant step forward in managing haemophilia B. It could change lives, a testament to advancements in UK haemophilia care.”
Adding to this, Suzanne Rankin from the Cardiff and Vale University Health Board praised the dedication of their Haemophilia Centre and Pharmacy teams, emphasising a collaborative mission to improve patient care and lives.
This new treatment not only marks a significant advancement but also ignites hope for a brighter future for many who have battled haemophilia for far too long. Let’s celebrate this incredible milestone and the inspiring journey of Nigel and countless others! ❤️ #MedicalBreakthrough #HopeForHaemophilia #NewEraInTreatment