Shocking moment in the skies! 🌤️✈️ Nia Jones, a mum from Ruthin, Denbighshire, was all set for a spontaneous trip to Barcelona when her flight took a dramatic turn. Just moments after take-off, Nia collapsed, her world turning black. She woke up on the aisle of the plane, surrounded by concerned passengers, and learned the flight had made an emergency landing in Paris.
After waking up with confusion and fear, Nia was rushed to the hospital where initial tests revealed nothing. But back in the UK, things took another twist. Following a second blackout, she was diagnosed with epilepsy and later, with a super-rare genetic disorder called multiple endocrine neoplasia type four. Only about 100 people worldwide have it!
The disorder, which affects the tumour suppressor gene, poses a real risk of tumours in organs like the thyroid and pancreas. Doctors were unsure if it was behind her epilepsy, but high calcium levels linked to her condition could definitely trigger seizures.
Since undergoing surgery to remove three parathyroid glands, Nia has been seizure-free and even got her driving licence back! 🚗💪 “I have regular scans now, but I’m doing well,” Nia shares, and she’s turning her personal journey into a message of hope – urging others to be aware of this rare disorder.
Want to spread awareness? Share Nia’s incredible journey and remind everyone that with the right treatment, living a normal life is totally possible. 💖 #AwarenessMatters #NiasJourney #RareConditions